MAPS:

Microphthalmia

Anophthalmia

Parent

Support

Books and Newsletters

Books We Recommend:

A Singular View:  The Art of Seeing With One Eye, by Frank Brady.  Recommended by Clyde Andrews of the Artifical Eye Clinic of Richmond in Richmond, Virginia.  Clyde e-mailed our MAPS group to recommend a book he thought many of our families might be interested in. (from our Winter 2007-08 newsletter)

Get a Wiggle On, by Sherry Raynor & Richard Drouillard.  A Guide for Helping Visually Impaired Children Grow.  This is a real basic book for parents of infants who are blind or visually impaired with suggestions for assisting development from birth to the walking stage.  There is also a sequel by the same authors called Move It .  This book contains suggestions for assisting the development of preschool children who are blind or visually impaired from walking to school entrance age. Recommended by MAPS mom Michelle.

Independent Movement and Travel in Blind Children: A Promotion Model, by Joe Cutter.  This book is highly recommended by Carol Castellano, parent of a braille reader, author, President and co-founder of Parents of Blind Children-NJ, an affiliate of National Organization of Parents of Blind Children. 

Just Enough to Know Better - A Braille Primer, by Eileen P Curran.  Published by the National Braille Press, www.nbp.org.  This is a guide for parents to learn braille.  Very easy to follow.  Recommended by MAPS mom Michelle.

My Path Leads to Tibet: The Inspiring Story of How One Young Blind Woman Brought Hope to the Blind Children of Tibet, by Sabriye Tenberken.  Great role model.

My Fake Eye.  The Story of My Prosthesis, by Nancy Chernus-Mansfield and Marilyn Horn.  (from the website) Full color photographs and a clear, calm, matter-of-fact presentation make this book a very useful and comforting tool for the child as well as parents and siblings of children who have had or will be having an eye enucleated.  Recommended by MAPS mom Michelle.

Parenting Preschoolers:  Suggestings for Raising Young Blind and Visually Impaired Children, by Kay Alicyn Ferrell.   (from website) This primer provides practical answers to the questions most frequently asked by parents and gives advice on what to expect, how to adapt to the child's situation and needs, and what to look for in early education programs.

The Bridge to Braille, by Carol Castellano.  (from back cover)  The Bridge to Braille is a parctical, step-by-step guide that will show parents and teachers how to help blind children progress from early literacy experiences all the way to full participation in the classroom.  Recommended by MAPS mom Michelle.  

The Family of Owen M., by Erin Flaherty, Allison Hawkins, and Stephanie Heaton.  "Learn everyday things about orientation and mobility" in this lighthearted, illustrated book about a blind boy named Owen M. and his family. A perfect tool to teach classmates, parents, and friends of blind children how O&M helps Owen travel around his house, in stores, and outside.   Recommended by MAPS mom Michelle. 

Touch the Top of the World: A Blind Man's Journey to Climb Farther Than the Eye Can See, by Erik Weihenmayer.  Very inspirational. 

 

MAPS 

Newsletters 

Click on an issue below to download a free pdf copy.

Spring 2008 issue:

Article focusing on education including teaching sign language to blind children, transitioning to preschool, articles with general ed. teachers with a blind child in their classroom, and Q&A with TVI Lisa LaDue. 

Winter 2007 issue:

Articles include: Everything you need to know for the holidays, including activites, gifts, recipes, and websites for enjoying the holidays with a blind/VI child. "Derek-My Old Soul" (unilateral micro). Hughes family selected for Extreme Makeover Home Edition. Q & A with Ocularist Walter T. Tillman. 

Fall 2007 - Premier Issue

Articles include: "Your Baby has Anophthalmia"; "We call him AJ (bilateral micro); "Ella's Story" (bilateral anoph); Update on Dupont case settlement; Q & A with adult John Pitzen (bilateral anoph.).